Willingness to Participate in a Precision Medicine Cohort Study, Survey

This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of information to participants. In the original study, respondents were first shown a description of the cohort study and told that participants might get access to the study information collected about their health.

Police Access to Genetic Genealogy Databases Survey

This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases. The survey assesses participant characteristics and views on the purposes that law enforcement should be allowed to search genealogical websites and social media accounts, whether law enforcement should be allowed to require direct-to-consumer testing companies to reveal information about their customers, and other topics.

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