The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful). This scale, the Parental Personal Utility Scale (Parent PrU), was specifically adapted for parents of children who have undergone genomic testing.

The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial classification decisions about other people. The survey includes demographic questions (including race, country of origin, political party affiliation, political views, gender, age, education, income, etc.) as well as belief in genetic essentialism, racial attitudes, and beliefs about the relevance of genetic ancestry testing in medicine measures.

Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics.

Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer genetic genealogy companies.

Wonkam and colleagues designed this survey to gather information about how Cameroonian parents with SCA-affected children feel towards prenatal diagnosis and termination of an affected pregnancy.

This survey was designed to elicit responses from providers’ regarding their experiences with and perceptions about patient-generated family histories.

Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and resesarch using them, perceptions of their health status, and other topics. Please check your downloads folder for the survey after you click the link to this content.

Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentially use personal health data as part of their research. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experiences and attitudes of early adopters of self-tracking health data. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which seeks diverse participants to ensure equitable benefits of precision medicine research.