Biobanking and genomic databases | ELSIhub

Biobanking and genomic databases

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

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ELSIcon2024 • Paper • June 12, 2024

Authors:

Speaker: Tamar Schiff, MD (she/her/hers) - NYU Grossman School of Medicine

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

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ELSIcon2024 • Paper • June 12, 2024

Authors:

Speaker: Robert I. Field, JD, MPH, PhD - Drexel University

ELSIcon2024: Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG

Read more about ELSIcon2024: Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG

ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Nathan Reed – Northwestern University

ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra

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ELSIcon2024 • Paper • June 10, 2024

Authors:

Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan

ELSIcon2024: Whose Science? Whose Knowledge? Equitable Partnerships and Diverse Teams for Just Genomic Research

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ELSIcon2024 • Panel • June 10, 2024

Authors:

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

Christa Caggiano

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Genomic Information

genetic ancestry

Biobanking and genomic databases

Laura J. Rasmussen-Torvik

Read more about Laura J. Rasmussen-Torvik

epidemiologic methods

Biobanking and genomic databases

Genetic Association Studies

23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says

Read more about 23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says

The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.

ELSIcon2022 Paper: Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa

Read more about ELSIcon2022 Paper: Symbolic Legislation and the Regulation of Stroke Biobanking and Genomics Research in Sub-Saharan Africa

ELSIcon2022 • Paper • May 27, 2022

Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu, Reginald Obiako, Mayowa Ogunronbi, Michelle Nichols, Carolyn Jenkins, Ayodele Jegede, Raj Kalaria, Mayowa Owolabi, Bruce Ovbiagele, Oyedunni Arulogun, Rufus Akinyemi

ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation

Read more about ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation

ELSIcon2022 • Paper • May 27, 2022

Naomi Scheinerman