ELSIcon2024: Whose Science? Whose Knowledge? Equitable Partnerships and Diverse Teams for Just Genomic Research

ELSIcon2024 • Panel • June 10, 2024 

Authors:

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

Genome scientists’ increased efforts to recruit diverse research participants and form diverse research teams rely on building relationships but often fall short of establishing equitable partnerships. Historically, collaborations in genomic research have reflected a landscape in which power is concentrated in a few scientific centers and the benefits of research redound to institutions with the greatest power and resources, while marginalized communities disproportionately shoulder the potential risks of exploitation and group harm. The trustworthiness of institutions and research teams has been a central part of the ELSI communities’ discourse related to overcoming these historical challenges and advancing diversity, inclusion, justice, and equity. This panel focuses on models of equitable partnership and the role of meso-level actors, policies, and procedures that define the contours of the relationships between researchers, institutions, and communities. Panelists will examine the real-world barriers and facilitators that projects face to forging partnerships and teams that can optimize the potential for benefit, equity, and justice in genomic research.

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