From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

ELSIcon2024 • Panel • June 12, 2024 

Authors:

Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) - St. Jude Children's Research Hospital

Panelist: Leila Jamal, ScM, PhD, LGC (she/her/hers) - National Cancer Institute & National Institutes of Health Bioethics Department

Panelist: Katherine Bonini, MS, MA, CGC (she/her/hers) - Mount Sinai Hospital

Panelist: Nora B. Henrikson - Kaiser Permanente Washington

Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18

ELSIcon2024 • Panel • June 12, 2024 

Authors:

Corresponding Author: Benjamin Wilfond, MD (he/him/his) - Seattle Children's Research Institute

Panelist: Jennifer Castillo, JD - Trisomy Collaborative

Panelist: John Carey, MD, MPH, FAAP, FACMGG (he/him/his) - University of Utah

Panelist: Mark Mecurio - Yale University 

Panelist: Katherine Kosiv, MD (she/her/hers) - Yale University