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Grant Abstract
Colliding Categories: Haplotypes, Race & Ethnicity
The aim of this project is to explore the ethical and legal ramifications of the impending collision between biological and regulatory classifications of population subgroups in American society. The…- Ethics
- Ethnic group
- genetic mapping
- genotype
- Internet
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Grant Abstract
Using Third-Party Data in Pedigree and Subgroup Analyses
The relevance of racial and ethnic identities for biomedical research and patient care increasingly is at issue, particularly in the emerging contexts of post-genomic research and genetic medicine.…- African American
- caucasian American
- Clinical Research
- data collection methodology /evaluation
- family genetics
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Grant Abstract
Genetics Testing in Midwest American Indians
The goal of this two-year project is to uncover issues related to genetics testing among the Native American populations of the Midwest. A project of this nature cannot be merely culturally sensitive…- behavioral /social science research tag
- Belief
- Clinical Research
- culture
- data collection methodology /evaluation
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Grant Abstract
Learning About Research in North Carolina (LeARN)
The proposed study, Project LeARN (Learning About Research in North Carolina), will build on a series of well established population based studies of the genetic, environmental and behavioral…- African American
- Attitude
- behavioral /social science research tag
- caucasian American
- Clinical Research
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Grant Abstract
Distrust, Race/Ethnicity, and Predictive Genetic Testing
The overall goals of this project are to increase understanding of the nature, distribution, and correlates of trust and distrust related to predictive genetic testing and to investigate the…- African American
- age difference
- behavioral /social science research tag
- Belief
- caucasian American
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Grant Abstract
Parent Communication of BRCA1/2 Test Results to Children
One of the primary motivations for parents to participate in BRCAI/2 testing is to find out about their minor children's risk of developing cancer. However, parents often report feeling…- adolescence (12-20)
- behavior prediction
- behavioral /social science research tag
- behavioral medicine
- brca gene
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Grant Abstract
Parent Communication of BRCA1/2 Test Results to Children (II)
This application is for a 5-year competitive continuation of a project originally funded by the National Human Genome Research Institute's Ethical, Legal, and Social Implications Research…- Adult
- Affect
- Age
- Area
- Benefits and Risks
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Grant Abstract
Distributive Justice in Human Genetic Variation Research
The Mentored Scientist Development Award in Research Ethics will fulfill three main goals: 1) to obtain a broad and in-depth foundation in research ethics and to develop research skills in ethical…- Address
- Award
- base
- Biomedical Research
- Cells
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Grant Abstract
A Framework for Disability Perspectives on HGP
The Human Genome Project (HGP) is a source of hope and a cause for concern for people with disabilities and their families. Few researchers have solicited the input of the disability community about…- Attitude
- behavioral /social science research tag
- Clinical Research
- Data Collection
- developmental disease /disorder
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Grant Abstract
Problem-Based Learning Unit for Teaching ELSI/Genetics
This project will advance the level of genetic literacy in science teachers through the development and dissemination of a curriculum unit for teaching ELSI/genetics. Professional development…- Clinical Research
- curriculum
- education evaluation /planning
- educational resource design /development
- Genetics