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Grant Abstract
Challenges of Informed Consent in Return of Data from Genomic Research
Genomic data, including findings incidental to the purpose for which a study is undertaken, can contain information of use and importance to research subjects related to their health, lifestyle, and…- Access to Information
- Address
- Adverse effects
- adverse outcome
- Alzheimer's Disease
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Grant Abstract
Returning research results in children: Parental Preferences and Expert Oversight
When individuals are queried about whether or not they wish to receive individual research results about themselves that are discovered in the course of genomic research, the majority indicate that…- adjudicate
- Agreement
- base
- Behavior
- Behavioral
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Grant Abstract
Innovative Approaches to Returning Results in Exome and Genome Sequencing Studies
Exome sequencing and whole genome sequencing (ES/WGS) are rapidly emerging as important tools in human genetics research. Unlike conventional approaches, ES/WGS can putatively identify all functional…- adjudicate
- Adult
- Alleles
- base
- Benefits and Risks
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Grant Abstract
Multidisciplinary Study of Race Appearance Ancestry Discrimination & Prejudice
The U.S. civil rights movement took place nearly a half century ago, yet significant racial disparities persist in health and justice. The elimination of these disparities is a goal shared by many,…- Address
- American
- Anthropology
- Appearance
- Appointment
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Grant Abstract
Ethical, Legal, and Social Implications in Military Genomics
Advances in genomic science are attracting the interest of the U.S. military for their potential to improve medical care for members of the militay and to aid in military recruitment, training and…- biobank
- Bioethics
- Biomedical enhancement
- Caring
- combat
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Grant Abstract
The impact of uncertainty in genome-wide testing for Autism Spectrum Disorder
Chromosomal Microarray Analysis (CMA) is a genome-wide technology that allows for identification of genomic alterations, such as deletions and duplications, at an unprecedented resolution. However,…- autism spectrum disorder
- Autistic Disorder
- base
- Categories
- Characteristics
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Grant Abstract
Interactive Multimedia and Biorepository Informed Consent
The long-term goal of this research is to develop multimedia technology and interactive instructional strategies to improve the effectiveness and efficiency of obtaining informed consent for human…- animation
- base
- Benefits and Risks
- biobank
- Bioethics
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Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Grant Abstract
Understanding African Americans Receptivity to Genetic Medicine and Research
Recent advances in genomic medicine and genetic testing have increased availability of and access to genetic assessments in both specialty and routine clinical care. Isolation of genetic markers for…- Adult
- Advocate
- Affect
- African American
- American
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Grant Abstract
Mapping an ELSI-integrated translational pathway with cell-free fetal DNA testing
The objective of this training and research project is to develop the candidate into an independent and interdisciplinary ELSI researcher, with the ability to intertwine qualitative empirical with…- abortion
- Adopted
- Adoption
- Alleles
- Amniocentesis