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Data Dictionary: Newborn Screening Residuals
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The data dictionary outlines the structure,… -
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Data Dictionary: Pediatricians' Understanding of Children's Health Rights
This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The data dictionary for this study outlines the structure,… -
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Data Dictionary: The Influence of Genetic Testing on Redirection of Care in the NICU
Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The data dictionary for this study outlines the structure,… -
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Data Dictionary: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the… -
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Data Dictionary: Alternate Understandings of Genetic Causation
The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising… -
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Data Dictionary: CRiTICS - Video Coding
Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The data dictionary for this study outlines the… -
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Data Dictionary: ECS - Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes
REDCap data dictionary for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes." The data dictionary… -
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Data Dictionary: Improving Understanding about Pre-Implantation Genetic Screening (PGS) with In Vitro Fertilization
The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The data dictionary for this study outlines the… -
Research Tool
Data Dictionary: Newborn Screening Education
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The data dictionary outlines the structure,… -
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Codebook: Utah Genome Project - Informed Consent
This project evaluated simplified tools used to inform the public around the consent process. The REDCap codebook for this study outlines each data element of the survey, including the questions…