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Grant Abstract
Developing strategies for using DNA data to assist family reunifications across child development stages
PROJECT NARRATIVE No protocol exists for use of living children’s DNA to reunify families separated due to disasters, armed conflict, or migration, despite DNA data being a powerful biometric tool… -
Grant Abstract
Promoting Access to Payment Pathways for Emerging Molecular Diagnostics
PROJECT NARRATIVE. Molecular diagnostics (MDx) can provide personalized care and improve patient outcomes; however, disparities in payment for MDx create barriers that delay or prevent patients from… -
Grant Abstract
From Research to Clinic: Addressing Ethical and Policy Challenges Facing the Gene Therapy Ecosystem
PROJECT NARRATIVE The translational gene therapy ecosystem faces several interrelated challenges: 1) obtaining sufficient evidence of safety/efficacy from clinical trials to justify regulatory… -
Grant Abstract
Understanding barriers and facilitators to pharmacogenomic testing in chronic pain care
Project Narrative: Pharmacogenomics has the potential to improve medication safety in the treatment of chronic pain—which impacts an estimated 1 in 5 adults; however, testing is rarely ordered. Pain… -
News
New Special Report of the Hastings Center Report
We are pleased to announce the publication of a new Hastings Center Report, special report, "Envisioning a More Just Genomics". The report, a collaboration between The Hastings… -
News
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your chance to celebrate incredible achievements within the… -
Video
November 2024 EFF: Material (Mis)Identities: Art, Genes and Ethics
How can genetically-incorporated art examine, highlight, and challenge existing social constructs such as the formation of racial identity? This ELSI Friday Forum explored this question and focused…- Humanities and the Arts
- race and bioethics
- Genes
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In the Media
Genetic Discrimination is Coming for Us All
The Atlantic |Insurers are refusing to cover Americans whose DNA reveals health risks. It’s perfectly legal.- genetic discrimination
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Event
Precision Genomics for Human Health
Precision genomics involves advances in genetics, data science, clinical biomedicine and biotechnology. Developments in genome sequencing technologies and large-scale biobanking projects are… -
News
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in South Korea. Professor Lee and Professor Kim are…