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Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa

Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…

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Technologies to Operationalize Indigenous Data Sovereignty

Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…

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Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)

As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…

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Current Legal Challenges to Abortion: Implications for Prenatal Genetics

The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…

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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research

The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…

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Realizing the Self-Determination Goals of Indigenous People in Genetics Research

Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…

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Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond

The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…

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Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease

Scientific and technological advances in the field of genomics have the potential to enable targeted clinical and public health measures to manage infectious disease outbreaks. The convergence of the…

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Race, Genetics, and Genetics Education

The completion of the Human Genome Project in 2003 opened up the floodgates of genetic data, ushering in rapid technological and scientific change. Today, the decreasing costs of genome sequencing…