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Expanded Carrier Screening (ECS): Clinical and Ethical Considerations for Genetic Counseling
Targeted carrier screening began over 50 years ago with a focus on populations at increased risk for specific genetic conditions based on patient-reported racial, ethnic, or ancestral background. As…- expanded carrier screening
- genetic counseling
- genetic technologies
- carrier screening
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Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research
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Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization
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Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster
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Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening
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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond
The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…- Genetics education
- popular culture
- science education
- Arts
- Informational aids
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Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Scientific and technological advances in the field of genomics have the potential to enable targeted clinical and public health measures to manage infectious disease outbreaks. The convergence of the…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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Race, Genetics, and Genetics Education
The completion of the Human Genome Project in 2003 opened up the floodgates of genetic data, ushering in rapid technological and scientific change. Today, the decreasing costs of genome sequencing…- race and genetics
- genetic education
- Racial essentialism
- Prejudice
- Racial conceptualization