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News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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Collection
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening
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News
Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…- genome informed consent
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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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News
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD In 1991, sociologist Abby Lippman proposed the geneticization thesis, i.e., that “genetic science [would]…- genetics and responsibility
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News
Melanie Myers: A Call for Research on Genetic Counseling Processes and Practices
Dr. Myers discusses this exciting new RFA – and how to use ELSIhub to find and follow up on funding opportunities Melanie Myers, PhD, MS spoke with CERA staff about the new National Human…- Genetic Counseling
- genetic counseling research
- genetic counseling training
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News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…- racism
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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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News
TraineeHub Resources
This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email…- TraineeHub Resources
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Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement