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Video
ELSIcon2022 Paper: Awareness and Utilization of Genetic Testing among Hispanic/Latino Adults Living in the US: The Hispanic Community Health Study/Study of Latinos
ELSIcon2022 • Paper • May 27, 2022 Kurt D. Christensen, Mengran Zhang, Lauren Galbraith, Einat Granot-Hershkovitz, Sarah Nelson, Sara Gonzalez, Maria Argos, Krista Perreira, Martha Daviglus, Carmen…- Uptake of genetic testing
- Health Disparities
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Flash • May 27, 2022 LaKisha David African Americans generally lack awareness of their ancestral family history due to the forced displacement of their ancestors during the…- Relative finding/matching
- identity
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Paper • May 27, 2022 Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang This survey is aimed at identifying the perception of the general public and…- Motivation to participate in research
- law
- Regulation
- Governance
- Paper
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Video
Exploring Difference in the Biology Classroom: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature
Co-Moderators: Marnie Gelbart, PhD (pgEd) & Robin Bowman, MEd (pgEd) Presenters: Ina Amarillo, PhD & Robin Bennett, MS, LGC, ScD Hon Pedigrees are a widely used tool in medicine,…- Pedigree
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Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
Video
Genetics and AI: Group Privacy and Fairness
Big data and artificial intelligence are growing more pervasive and are creating new, complex links between individuals and the many groups to which they might belong, including groups no one might…- Big Data
- AI
- genomic privacy
- Algorithms
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Collection
Privacy, Security, and Nondiscrimination Best Practices for Direct-to-Consumer (DTC) Genetic Testing Companies
The completion of the Human Genome Project opened new doors for business enterprise. One such activity is direct-to-consumer (DTC) genetic testing, or genetic testing offered on a service-driven…- data privacy
- direct-to-consumer genetic testing
- GINA
- genetic discrimination
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Funding Opportunity
Diversity Centers for Genome Research (U54 Clinical Trials Optional)
- diversity
- Genome research
- Minority Serving Institution (MSI)
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Funding Opportunity
Diversity Centers for Genome Research (UG3/UH3 Clinical Trials Optional)
- diversity
- genomic research
- Minority Serving Institution (MSI)
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Video
ELSIcon2022 Panel: Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Panel • May 27, 2022 Joshua Combs, Sigal Klipstein, Jeanne O'Brien, Erin Rothwell Sickle cell disease (SCD) is an inherited hemoglobinopathy that results in a pattern of early…- Pre-Recorded
- Panel
- Access to genetic screening and therapies
- Gene therapy and gene editing