ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy

ELSIconversations Series 3 - Fall 2022

Conference

2022-11-29

Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD

Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David, MCP, PhD

Links to pre-recorded videos:

Karen Meagher, PhD: ELSI and the New Precision Stewards?
Alyx Vogle, MS CGC: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
LaKisha David, MCP, PhD: An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services

Links to optional reading:

This series includes selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors will briefly recap their research at each session, followed by moderated discussion and audience Q&A.

Transcript File

November 2022 ELSIconversations Resources.pdf (72.61 KB)

Videos in Series

ELSIconversations Series 3 - Fall 2022 - ELSIconversations ELSICon2022: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia

ELSIconversations Series 3 - Fall 2022 - ELSIconversations ELSICon2022: The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?

ELSIconversations Series 3 - Fall 2022 - INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)

ELSIconversations Series 3 - Fall 2022 - Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial

ELSIconversations Series 3 - Fall 2022 - Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation

ELSIconversations Series 3 - Fall 2022 - White racial framing and comfort with medical research: a critical analysis

ELSIconversations Series 3 - Fall 2022 - An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services

ELSIconversations Series 3 - Fall 2022 - A Survey on Public Perception toward the Korean National Bio Big Data Project

ELSIconversations Series 3 - Fall 2022 - Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?

ELSIconversations Series 3 - Fall 2022 - ELSI and the New Precision Stewards?

ELSIconversations Series 3 - Fall 2022 - The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants