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Research Tool
Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing
Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial… -
Research Tool
Black-White Race Morphs Research Tool
The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face… -
Event
The 6th ELSI Congress | ELSIcon2024
ELSIcon2024: The 6th ELSI Congress will take place at Columbia University in New York City from June 10-12, 2024. The 6th ELSI Congress welcomes all with an interest in the ethical, legal, and… -
Funding Opportunity
Diversity Centers for Genome Research (U54 Clinical Trials Optional)
- diversity
- Genome research
- Minority Serving Institution (MSI)
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Funding Opportunity
Initiative to Maximize Research Education in Genomics: Diversity Action Plan (R25 Clinical Trials Not Allowed)
- Education activities
- Research experiences
- Skills development
- diversity and inclusion
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Funding Opportunity
NIH Science Education Partnership Award (SEPA) (R25 - Clinical Trial Not Allowed)
- Education activities
- diversity
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In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa
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Funding Opportunity
Investigator-Initiated Research in Genomics and Health Equity (R21 Clinical Trial Optional)
- Health Equity
- Genomics research