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Research Tool
Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing
Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial… -
Research Tool
Black-White Race Morphs Research Tool
The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face… -
Event
The 6th ELSI Congress | ELSIcon2024
ELSIcon2024: The 6th ELSI Congress will take place at Columbia University in New York City from June 10-12, 2024. The 6th ELSI Congress welcomes all with an interest in the ethical, legal, and… -
Research Tool
ELSI Research Methods Questionnaire
Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics. -
Research Tool
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program
"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with… -
Research Tool
"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with… -
Research Tool
"What Will You Check For?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"What Will You Check For?" is a 57 second video for American Indian and Alaska Native participants that explains how the All of US Research Program will return some or all results to… -
Research Tool
"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program
"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants. It provides information on…