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Video
Race, Ethnicity, and Ancestry (REA) in Clinical Genetics: Variability in Collection and Use
Hannah Wand, MS, CGC ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used…- Race and Ethnicity
- ancestry
- clinical genetics
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Video
The Challenges of Standardization in a System with Complex Incentives
Gillian Hooker, PhD, ScM, CGC ADWG ELSIconversations Session 1 - April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition…- Standardization
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Video
Balancing Data Privacy and Data Sharing: Normative and Technical Approaches
ELSI Friday Forum • April 8, 2022 To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to…- data privacy
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Video
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation
ELSI Friday Forum • March 11, 2022 Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families…- autism
- autistic representation
- autistic genomics research
- genetic diagnosis
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Video
Video trailer (in English) on the process for family reference sample provision for missing migrant investigations
Published January 2022 This English-language video trailer for migrant advocates and migrant families describes the process for family reference sample provision for missing migrant investigations.…- DNA samples
- Immigration
- DNA testing
- DNA Databases
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Video
Video (in English) on the process for family reference sample provision for missing migrant investigations
Published December 2021 This English-language video for migrant advocates and migrant families describes the process for family reference sample provision for missing migrant investigations. The…- DNA sample
- Immigration
- DNA Databases
- DNA testing
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Video
Video trailer (in English) on the process for DNA collection from migrant detainees for CODIS
Published February 2022 This English-language video trailer for migrant advocates and migrant families describes the process for DNA collection from migrant detainees for CODIS. The trailer was…- DNA testing
- Immigration
- DNA samples
- DNA Databases
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Video
Video trailer (in English) on the process for DNA testing at the border to verify family relationship claims
Published February 2022 This English-language video trailer for migrant advocates and migrant families describes the process for DNA testing at the border to verify family relationship claims.…- DNA testing
- DNA Databases
- DNA samples
- Immigration
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Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
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Video
Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics
ELSI Friday Forum • January 14, 2022 New genetic technologies have incrementally but steadily altered the landscape of human reproduction. These technologies include polygenic risk scores coupled…- genetic technologies
- equitable access