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Video
New ACMG Guidance on Carrier Screening: More or Less Equitable?
ELSI Friday Forum • December 10, 2021 Next-generation sequencing capabilities have enhanced general population carrier screening by expanding the number of genes and variants on carrier screening…- carrier screening
- Genetic Counseling
- ethics of prenatal testing
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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…- All of Us
- precision medicine research
- inclusion
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Video
Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean?
ELSI Friday Forum • November 12, 2021 There is an ongoing concern that collaborative genomic research conducted in lower- and middle-income countries by partners in high-income countries, is…- benefit sharing
- African genetics
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Video
Law Enforcement and Genetic Data: A Discussion for Journalists
Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with…- Law Enforcement
- Genetic Data Sharing and Management
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Video
Genomics, Human Behavior, and Social Outcomes
Genomics, Human Behavior, and Social Outcomes • October 12, 2021 This is the first in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by…- ELSI
- Journalism
- Sociogenomics
- Behavioral Genetics
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Video
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…- Data Governance
- data sovereignty
- genomic data sharing policy
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Video
Welcome and Opening Remarks
Welcome and opening remarks to the ELSI Virtual Forum Sandra Lee, PhD Mildred Cho, PhD -
Video
Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification
ELSI Friday Forum • September 10, 2021 Following the attack on the World Trade Center in New York City on September 11, 2001, investigators engaged in the greatest forensic challenge in the US and…- Disaster victim identification (DVI)
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Video
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum • July 9, 2021 Multiple US states have passed laws limiting the ability to terminate a pregnancy affected by Down syndrome or other genetic conditions, with the Ohio version of…- Prenatal Counseling
- prenatal genetic testing
- Legal Aspects