ELSI Friday Forum • November 12, 2021
There is an ongoing concern that collaborative genomic research conducted in lower- and middle-income countries by partners in high-income countries, is not always of benefit to the people who participate in such research. In this forum, we will consider newly emerging approaches to benefit sharing in the context of the collection of African genomic samples by companies based elsewhere. Building on an actual case study of a “contractually committed profit-sharing” approach, this session discusses the meaning of “co-creation,” stewardship and the role of community engagement. What does fairness and equity mean in commercial collaborations with lower to middle income countries? South African genomics researcher Prof. Michèle Ramsay and Cameroonian bioethicist Dr. Nchangwi Munung discuss the ethics of benefit-sharing in the context of the history of genomics research and colonial history in Africa.
Panelist: Nchangwi Munung, PhD (University of Capetown)
Panelist: Michèle Ramsay, PhD (University of the Witwatersand)
Moderator: Jantina De Vries, PhD (University of Capetown)
Please see the attached transcript and resources files (located in the upper right-hand corner of the page) for more information on this topic, as well as the ELSIhub Collection "Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa."
Tags
Videos in Series

ELSI Friday Forum - Value and Values in Payment for Gene Therapies

ELSI Friday Forum - Visual Storytelling in ELSI Research

ELSI Friday Forum - Indigenizing Genomics and Advancing Indigenous Data Sovereignty

ELSI Friday Forum - Wrestling with Social and Behavioral Genomics

ELSI Friday Forum - Genetic Advantages in Sports: When Do They Count as "Doping"?

ELSI Friday Forum - Genetics and AI: Group Privacy and Fairness

ELSI Friday Forum - Advocacy and Allyship in ELSI: Opportunities and Challenges

ELSI Friday Forum - Decoloniality and Genetic Ancestry: Situating the "African Genome"

ELSI Friday Forum - Legal Challenges to Newborn Screening Research

ELSI Friday Forum - Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice

ELSI Friday Forum - Addressing Algorithmic Harms: Practices and Provocations for Health AI

ELSI Friday Forum - Balancing Data Privacy and Data Sharing: Normative and Technical Approaches

ELSI Friday Forum - Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies

ELSI Friday Forum - Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics

ELSI Friday Forum - New ACMG Guidance on Carrier Screening: More or Less Equitable?
ELSI Friday Forum - Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum - Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum - Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease

ELSI Friday Forum - Widening the Lens: Using Arts in ELSI Research

ELSI Friday Forum - Migrant DNA: Context, Ethics and Legal Issues

ELSI Friday Forum - Genomics and Infectious Disease: Scientific and ELSI Issues of COVID

ELSI Friday Forum - ELSI Friday Forum: Biobanking in the Era of COVID

ELSI Friday Forum - Addressing Racism in Research and Clinical Practice
