The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
81 - 90 of 316 Topics
-
Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Flash: Conceptualization and Measurement of Genetic Literacy
ELSIcon2022 • Flash • May 27, 2022 Brianne Daly, Kimberly Kaphingst Genetic literacy, a construct often thought of as genetics-related knowledge and skills, is critical to individuals being able to…- Language and categorization
- Methodology and study design
- Flash
- Pre-Recorded
-
Video
ELSIcon2022 Paper: Community Perspectives on Electronic Consent Education for the Retention of Newborn Screening Bloodspots
ELSIcon2022 • Paper • May 27, 2022 Erin Rothwell, Caren Frost, Bob Wong, Erin Johnson Promoting informed decision making for research while concurrently advancing equity and justice for underserved…- Attitudes about sharing biological samples and health data
- Biobanking and genomic databases
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Paper: Awareness and Utilization of Genetic Testing among Hispanic/Latino Adults Living in the US: The Hispanic Community Health Study/Study of Latinos
ELSIcon2022 • Paper • May 27, 2022 Kurt D. Christensen, Mengran Zhang, Lauren Galbraith, Einat Granot-Hershkovitz, Sarah Nelson, Sara Gonzalez, Maria Argos, Krista Perreira, Martha Daviglus, Carmen…- Uptake of genetic testing
- Health Disparities
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Flash: An Exploration of Family Connection and African Ethnic Identity Development Among African Americans Finding African Genetic Relatives While Using Consumer Genetic Genealogy Services
ELSIcon2022 • Flash • May 27, 2022 LaKisha David African Americans generally lack awareness of their ancestral family history due to the forced displacement of their ancestors during the…- Relative finding/matching
- identity
- Flash
- Pre-Recorded
-
Video
ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Paper • May 27, 2022 Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang This survey is aimed at identifying the perception of the general public and…- Motivation to participate in research
- law
- Regulation
- Governance
- Paper
-
Video
Exploring Difference in the Biology Classroom: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature
Co-Moderators: Marnie Gelbart, PhD (pgEd) & Robin Bowman, MEd (pgEd) Presenters: Ina Amarillo, PhD & Robin Bennett, MS, LGC, ScD Hon Pedigrees are a widely used tool in medicine,…- Pedigree
-
Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
Video
Genetics and AI: Group Privacy and Fairness
Big data and artificial intelligence are growing more pervasive and are creating new, complex links between individuals and the many groups to which they might belong, including groups no one might…- Big Data
- AI
- genomic privacy
- Algorithms