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1741 - 1750 of 1828 Topics
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Grant Abstract
Impact of Psychiatric Genetic Data on Civil Litigation and its Relationship with Stigma
Advances in psychiatric genetics are likely to offer major diagnostic and therapeutic benefits, but also legal and social-related risks, to individuals who were diagnosed with, or have a proclivity…- Address
- Advocate
- Affect
- Area
- Attitude
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Grant Abstract
Impact of Privacy Environments for Personal Health Data on Patients
A big data ecosystem is evolving in our society in which people may have, or feel they have, little control over the flow of their personal health information, and thus their privacy. Further,…- Adult
- Affinity
- Area
- base
- Behavioral
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Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Grant Abstract
Building the Medical Information Commons: Participant Engagement and Policy
Many national and international public and private initiatives are forming to collect and share data on a large scale for research and clinical use. Collectively, these efforts may lead to the…- Affect
- Clinical
- clinical application
- Data
- data sharing
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Grant Abstract
Use of Genetic Information by Life, Long-term Care, and Disability Insurers: Exploring International Lessons, the Domestic Legal
This project employs multiple methods and a transdisciplinary approach to explore policy options for US federal and state governments seeking to address how life, long-term care, and disability…- Advocacy
- Affect
- Area
- Australia
- Case Study
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Grant Abstract
iCONCUR: informed CONsent for Clinical data and biosample Use for Research
Being transparent about the use of data collected during clinical care is important to establish trust relationships between patients and researchers. We propose to develop a system to elicit patient…- Ambulatory Care Facilities
- Back
- base
- Caring
- Case Report Form
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Grant Abstract
Developing and Evaluating Patient Centered Tools for Clinical Classification of Variants of Uncertain Significance
Targeted gene sequencing using large panels has become an increasingly important strategy for evaluating disease risk for many inherited diseases. Expanded gene panels are more sensitive than single…- Arrhythmia
- base
- Benign
- Cardiomyopathies
- Characteristics
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Grant Abstract
Genomics and Native Communities: Perspectives, Ethics, and Engagement
Candidate Dr. Nanibaa' Garrison is an Assistant Professor at Vanderbilt University on the tenure-track in the Center for Biomedical Ethics and Society with a primary appointment in the…- American Indian or Alaska Native
- Behavioral and Social Science
- Clinical Research
- Genetics
- Health Disparities
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Grant Abstract
Developing a Genomics Literacy Measure
Genomic literacy plays a critical role in informed decision-making for genomic testing, in the implementation of the test and the accurate interpretation of the results, and in our policy making…- American
- Awareness
- Biological Sciences
- Calibration
- Clinical Research
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Grant Abstract
Protecting the pRivacy Of Genomes in REsearch StudieS (PROGRESS)
With the dramatic reduction in the cost of whole genome sequencing (WGS), genomic data are becoming increasingly available and have the potential to advance public health and promote personalized…- Algorithmic Analysis
- Algorithmic Software
- Architecture
- Award
- Biomedical informatics