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Research Tool
Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing
Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial… -
Research Tool
Black-White Race Morphs Research Tool
The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face… -
Video
TraineeHub: Publishing ELSI in Scientific Journals
"Publishing ELSI in Scientific Journals" took place on September 7, 2023. This session was tailored to trainees and early career scholars aspiring to publish ELSI-related work in scientific… -
Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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Funding Opportunity
Diversity Centers for Genome Research (U54 Clinical Trials Optional)
- diversity
- Genome research
- Minority Serving Institution (MSI)
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Funding Opportunity
Initiative to Maximize Research Education in Genomics: Diversity Action Plan (R25 Clinical Trials Not Allowed)
- Education activities
- Research experiences
- Skills development
- diversity and inclusion
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Funding Opportunity
NIH Science Education Partnership Award (SEPA) (R25 - Clinical Trial Not Allowed)
- Education activities
- diversity
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In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa