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Research Tool
Making improvements in hospital care survey
The Making Improvements in Hospital Care Survey is a 32-item survey instrument designed to measure patient preferences for consent to non-invasive, quality improvement interventions in the hospital… -
Research Tool
Instrument for assessing mass media reporting of disease-related genetic discoveries
Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related to… -
News
ELSIhub Collections | Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Click here for all ELSIhub Collections Collection Editors Debra JH Mathews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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News
Code of Conduct
Code of Conduct for ELSIhub Events The ELSI community of scholars has attempted to nurture an academic culture that embraces the importance of diversity, supports the mentorship of young scholars,…- Code of Conduct
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News
Natural and social scientists differ in their conceptualization and use of race at a critical moment
In a recent contribution to the Yearbook of Physical Anthropology, Jada Benn Torres reviews the “race-as-biology” paradigms that were promulgated early in the discipline and tracks the emergence of…- genetic anthropology
- race and genetics
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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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News
LawSeqSM: Confronting the Legal Barriers to Genomic Medicine
On December 2, 2020 national experts convened for a Zoom webinar on “LawSeqSM: Facing the Legal Barriers to Genomic Research & Precision Medicine.” This event grew out of a project funded by the…- GENETIC engineering laws
- LawSeq
- Statutes and Laws
- genetic privacy law
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News
What is ELSI Research?
Thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Office…- ELSI research
- Genomics|History|NHGRI
- Scientific Advances and Accomplishments
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News
The latest attack on the right to abortion: Restricted reasons
Jonathan F. Will, a professor of law at Mississippi College School of Law, identifies a new trend in abortion restrictions. Distinct from previous abortion regulations which rely on the state’s…- abortion
- Selective Abortion
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News
Update on ASHG 2021 Annual Meeting
Dear ASHG Members, With the successful conclusion of ASHG’s first ever virtual meeting, we want to provide you with an update on the Society’s 2021 Annual Meeting. Given the continued uncertainty…- ASHG