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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…- racism
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News
TraineeHub Resources
This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email…- TraineeHub Resources
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News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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Video
Widening the Lens: Using Arts in ELSI Research
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated…- arts-based methods
- ELSI research
- ART
- Community Engagement
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Video
Migrant DNA: Context, Ethics and Legal Issues
This ELSI Friday Forum considers the ethical, social, and legal implications of the diverse applications of DNA technologies that impact migrants entering or resident in the United States. When…- Immigrants
- DNA testing
- human migration
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News
From Trainees to Scholars: Three ELSI Career Paths
ELSI scholarship is constantly evolving as new technologies raise new ethical challenges and questions. For younger scholars in the field, this presents ample opportunity to explore original topics…- ELSI research
- ELSI training program
- Careers in ELSI
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News
ELSIhub Collections | Race, Genetics, and Genetics Education
Click here for all ELSIhub Collections Collection Editors Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning Daphne O. Martschenko, PhD, Postdoctoral Research Fellow,…- race and genetics
- genetic education
- Genetics
- Racial essentialism
- genomics literacy
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease