ELSI Friday Forum
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021
Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and emerging principles, how research policies work across institutions, and the use of engaging tribes in deliberations about genomics issues to influence social and policy issues.
Please see the attached transcript and resources files ( located in the upper right-hand corner of the page) for more information on this topic, as well as these related ELSIhub Collections:
- Realizing the Self-Determination Goals of Indigenous People in Genetics Research, curated by Vanessa Y. Hiratsuka, PhD, MPH, Co-Director of Research and Evaluation, Assistant Professor of Clinical and Translational Research, Center for Human Development, University of Alaska Anchorage.
- Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research, curated by Keolu Fox, PhD, Assistant Professor, University of California, San Diego, Co-founder, Indigenous Futures Institute (IFI), Co-founder Native BioData Consortium (NBDC).
Alaska Native/American Indian Health Research
genomic data sharing policy