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ELSIhub Collections | Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Click here for all ELSIhub Collections Collection Editors Debra JH Mathews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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Video
Sexual and Gender Minorities’ Perspectives on Genetic Privacy and Identity in Research
Catherine Hammack-Aviran, MA, JD - Vanderbilt University Medical Center ELSIconversations - March 5, 2021 Sexual orientation and gender identity minorities (SGMs) suffer significant health…- genetic privacy
- Minority Groups
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Video
Platform Heals? Ethical Issues in Direct-to-consumer Telepharmacies
Ben Wills - The Hastings Center ELSIconversations - February 26, 2021 Healthcare is in the middle of a dramatic revolution. Hims, Hers, Roman, Nurx, LemonAid, and The Pill Club are start-ups…- direct to consumer marketing
- Direct to Consumer Genetic Testing
- telemedicine
- Healthcare
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Video
Part 1. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic, biological, environmental, and…- precision medicine research
- precision medicine
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Video
Part 2. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Subhashini Chandrasekharan, PhD and Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic…- precision medicine
- precision medicine research
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News
Code of Conduct
Code of Conduct for ELSIhub Events The ELSI community of scholars has attempted to nurture an academic culture that embraces the importance of diversity, supports the mentorship of young scholars,…- Code of Conduct
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Video
Developing Pathways for Community-led Research with Big Data: A Content Analysis of Stakeholder Interviews
Megan Doerr, MS, LGC - Sage Bionetworks & Joon-Ho Yu, MPH. PhD - University of Washington ELSIconversations - March 5, 2021 Big data (BD) informs nearly every aspect of our lives and, in health…- Big Data
- Community Engagement
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Video
A Qualitative Study to Develop a Privacy and Nondiscrimination Best Practice Framework for Personalized Wellness Programs
Rachele Hendricks-Sturrup, DHSc, MSc, MA - Harvard Pilgrim Health Care Institute and Harvard Medical School ELSIconversations - February 26, 2021 Employers are increasingly partnering with direct-…- Direct to Consumer Genetic Testing
- direct to consumer marketing
- Wellness programs
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Video
Democratic approaches to precision medicine and genetics research: comparing inclusiveness and effectiveness of PPI practices to the pursuit of the public good
Ilaria Galasso, PhD - University College Dublin ELSIconversations - March 5, 2021 In this paper we scrutinize emerging public involvement practices as a response to the major ELSI challenges around…- precision medicine research
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Video
What does ‘respect for persons’ really mean? Practical considerations for demonstrating respect in genomics research
Stephanie Kraft, JD - University of Washington ELSIconversations - March 5, 2021 Demonstrating respect for research participants is not only an ethical imperative but, if done effectively, it may…- Community Engagement
- Research Recruitment