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Publication

“Something with a frightening reputation”: 60 Minutes’ accommodation of HIV in gene therapy for sickle cell disease

Rhetoric of Health & Medicine
Craig O. Stewart, Amanda J. Young

Publication

Moving from 'fully' to 'appropriately' informed consent in genomics: The PROMICE framework

Bioethics
Julian J. Koplin, Christopher Gyngell, Julian Savulescu, Danya F. Vears
Koplin and colleagues propose a moral framework for evaluating informed consent models and conclude that, in the context of genomic sequencing technologies, appropriately (rather than fully) informed…

Publication

"CRISPR for disabilities: How to self-regulate" or something?

Journal of Bioethical Inquiry
Amanda Courtright-Lim
Courtright-Lim presents a decision tree to help guide self-regulation of basic research using germline editing with CRISPR.

Publication

Long-awaited progress in addressing genetic discrimination in the United States

Genetics in Medicine
A. C. F. Lewis, R. C. Green, Anya ER Prince

Publication

The problems with patchwork: State approaches to regulating insurer use of genetic information

DePaul Journal of Health Care Law
Jarrod O. Anderson, Anna C. Lewis, Anya ER Prince

Publication

Genetic testing and insurance implications: Surveying the US general population about discrimination concerns and knowledge of the Genetic Information Nondiscrimination Act (GINA)

Risk Management and Insurance Review
Anya ER Prince, Wendy R. Uhlmann, Sonia M. Suter, Aaron M. Scherer

Publication

The Young Geneticists Network and the ESHG-Young committee, a forward-looking international community

European Journal of Human Genetics
Florence Riccardi, Ruta Marcinkute, Celia Azevedo Soares, Patricia Stefana Calapod, Juliana Miranda Cerqueira, Elena Avram, Can Ding

Publication

Expanded carrier screening in the United States: A systematic evidence review exploring client and provider experiences

Journal of Genetic Counseling
Aarti Ramdaney, Lauren Lichten, Lauren Propst, Caitlin Mann, Gabriel A. Lazarin, Malorie Jones, Amy Taylor, Jennifer Malinowski

Publication

Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services

American Journal of Human Genetics
Christi J Guerrini, Jill O Robinson, Cinnamon C Bloss, Whitney Bash Brooks, Stephanie M Fullerton, Brianne Kirkpatrick, Sandra Soo-Jin Lee, Mary Majumder, Stacey Pereira, Olivia Schuman, Amy L McGuire
Guerrini and colleagues surveyed 23,196 genetic relative-finder (GRF) service participants and found that discoveries of genetic relatives are common. Most respondents reported that the discoveries…