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Publication
“Something with a frightening reputation”: 60 Minutes’ accommodation of HIV in gene therapy for sickle cell disease
Rhetoric of Health & Medicine
Publication
Moving from 'fully' to 'appropriately' informed consent in genomics: The PROMICE framework
Bioethics
Koplin and colleagues propose a moral framework for evaluating informed consent models and conclude that, in the context of genomic sequencing technologies, appropriately (rather than fully) informed…
Publication
"CRISPR for disabilities: How to self-regulate" or something?
Journal of Bioethical Inquiry
Courtright-Lim presents a decision tree to help guide self-regulation of basic research using germline editing with CRISPR.
Publication
Long-awaited progress in addressing genetic discrimination in the United States
Genetics in Medicine
Publication
The problems with patchwork: State approaches to regulating insurer use of genetic information
DePaul Journal of Health Care Law
Publication
Genetic testing and insurance implications: Surveying the US general population about discrimination concerns and knowledge of the Genetic Information Nondiscrimination Act (GINA)
Risk Management and Insurance Review
Publication
The Young Geneticists Network and the ESHG-Young committee, a forward-looking international community
European Journal of Human Genetics
Publication
Are genome-edited micro-organisms covered by Directive 2009/41/EC?—implications of the CJEU’s judgment in the case C-528/16 for the contained use of genome-edited micro-organisms
Journal of Law and the Biosciences
Publication
Expanded carrier screening in the United States: A systematic evidence review exploring client and provider experiences
Journal of Genetic Counseling
Publication
Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services
American Journal of Human Genetics
Guerrini and colleagues surveyed 23,196 genetic relative-finder (GRF) service participants and found that discoveries of genetic relatives are common. Most respondents reported that the discoveries…