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Research Tool
Whole Genome Sequencing and You
“Whole Genome Sequencing and You” is a 10-minute educational animated video about whole-genome sequencing for research participants, patients, and the general public. -
Research Tool
Genetic Literacy Survey
Abrams and colleagues designed the Genetics Literacy Survey to gather information about how the public understands genomics and applies their knowledge in everyday scenarios beyond medical settings,… -
Research Tool
The Colored, Eco-Genetic Relationship Map (CEGRM)
Kenen and Preters designed the Colored Ecological and Genetic Relational Map (CEGRM), a pictoral map used to organize information about client relationships with biological and non-biological kin,… -
Video
ELSIhub Introduction & Walkthrough
This is an introduction and walkthrough to ELSIhub. Take a look to see what incredible features this portal offers the ELSI community! Timestamps: Welcome to ELSIhub 0:00 Searching…- ELSIhub Introduction
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Video
6. The Grant Writing Review Process
Updated on 11/6/2020 This video will walk you through what happens to your NIH ELSI grant application after submission. -
Video
5. The NIH Biosketch
Updated on 11/6/2020 This video is focused on helping you prepare a stellar NIH biosketch for your ELSI grant application. -
Video
To Catch a Killer: Law Enforcement Uses of DNA Databases
Overview In 2018, law enforcement identified a suspect in the Golden State Killer case by matching the genomic profile of DNA left at crime scenes to those held in public databases and by using… -
Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Video
Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research
To be relevant and impactful, it has become increasingly necessary for researchers to engage stakeholders outside the usual research communities, such as patients and community representatives. Yet,… -
Video
CRISPR and Human Identity: Governing Germline Gene Editing
International uproar followed the announcement in late 2018 of the birth of twin girls whose genomes had been edited with CRISPR genome editing technology. Critics pointed not only to the health…- CRISPR
- Personal Identity
- Gene Editing
- Governance of emerging genomic technologies