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Video
ELSIcon2022 Panel: The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Panel • May 27, 2022 Katherine Blinzinsky, Subhashini Chandrasekharan, Sonya Jooma The All of Us Research Program is an ambitious effort to enroll one million or more…- Pre-Recorded
- Panel
- Data and data stewardship
- precision medicine
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Video
ELSIcon2022 Paper: Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Paper • May 27, 2022 Rachel Bailey A rhetorical utility of identity may provide a novel method of inquiry for bioethics research. To increase diversity of Precision Medicine (PM…- Pre-Recorded
- Paper
- Motivation to participate in research
- Education and public reception of genetic science
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Video
ELSIcon2022 Panel: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Panel Session • May 27, 2022 Gemme Campbell-Salome, Amy Sturm, Kelly Morgan, Eric Tricou Cascade testing of at-risk relatives can be an effective way to identify individuals…- Pre-Recorded
- Panel
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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Video
ELSIcon2022 Flash: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Flash • May 27, 2022 Alyx Vogle, Betty Cohn, Rebecca Ferber, Kerry Ryan, Gregory Feero, Debra Mathews, Anya Prince, Kayte Spector-Bagdady, Kunai Sanghavi, Wendy Uhlmann, Charles Lee…- Pre-Recorded
- Flash
- Stigma and discrimination
- Genetic testing and screening
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Video
ELSIcon2022 Paper: ELSI and the New Precision Stewards?
ELSIcon2022 • Paper • May 27, 2022 Sara Watson, Karen Meagher Advances in pathogen genomics and molecular epidemiology are keeping pace with next generation sequencing translational…- Pre-Recorded
- Paper
- Population screening and public health genomics
- Population Genetics
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Video
ELSIcon2022 Paper: An ELSI-informed strategy to use DNA data for humanitarian family reunifications
ELSIcon2022 • Paper • May 31, 2022 Sara H Katsanis, Diana Madden Family separation—whether caused by armed conflict, repressive regimes, disasters, or immigration policies—is traumatic for…- Live
- Paper
- Data and data stewardship
- identity
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Video
ELSIcon2022 Paper: Cancer's Margins: Exploring Trans* Experiences of Hereditary Cancer Risk
ELSIcon2022 • Paper • May 31, 2022 Sarah Roth Individuals with diverse gender identities are being newly recognized as a significant proportion of the population seeking genetic counseling in…- Live
- Paper
- Genetic Counseling
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Video
ELSIcon2022 Flash: Communicating precision medicine research: multidisciplinary teams and diverse communities
ELSIcon2022 • Flash • May 31, 2022 Julie Beans Introduction: Precision medicine research investigates the differences in individuals’ genetics, environment, and lifestyle to tailor health…- Live
- Flash
- tools
- precision medicine
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Video
ELSIcon2022 Panel: Developing an Evidence Base for Investigative Genetic Genealogy (IGG) Policy-Making
ELSIcon2022 • Panel Session 1 • May 31, 2022 Ellen Clayton, Stephanie Malia Fullerton, Amy McGuire, Natalie Ram Investigative genetic genealogy (IGG) is a novel technique for identifying…- Live
- Panel
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Flash: Distributional Cost-Effectiveness Analysis to Incorporate Health Equity Concerns in the Assessment of the Value of Precision Medicine Technologies
ELSIcon2022 • Flash • May 31, 2022 Cheng Chen, Jeroen Jansen BACKGROUND: Distributional cost-effectiveness analysis (DCEA) has been recently proposed as an intuitive extension of conventional…- Live
- Flash
- tools
- Health Disparities