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Video
ELSIcon2022 Panel: Extending the Belmont Principles: Sovereignty and Solidarity in Genomic Research
ELSIcon2022 • Panel Session 2 • May 31, 2022 Vanessa Hiratsuka, Bobby Saunkeah, Joon-Ho Yu, Alize Ece Gunay, Krystal Tsosie The Belmont principles of respect for persons, beneficence, and…- Live
- Panel
- Community oversight of research
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Video
ELSIcon2022 Flash: Health professionals’ perspectives on the ethics of using COVID-19 host genomic information for clinical and public health decision-making during the pandemic
ELSIcon2022 • Flash • May 31, 2022 Sheethal Jose, Gail Geller, Juli Bollinger, Jeffrey Kahn, Brian Garibaldi Advances in host genomics research can play an important role in enabling…- Live
- Flash
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Flash: How Did the Biodeterministic View of Criminality Influence Coercive Sterilization in the State of Iowa from 1934 to 1976?
ELSIcon2022 • Flash • May 31, 2022 Darian Thompson, Nina Vo, Stella Murphy, Juan Gudino, Nicole Novak At the end of the 19th century in the U.S., eugenic “science” posited that criminal…- Live
- Flash
- Eugenic sterilization in the 20th century
- reproductive genetics
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Video
ELSIcon2022 Paper: Patients’ and Parents’ Perceived Utility of Genomic Sequencing: Instrument Development and Validation
ELSIcon2022 • Paper • May 31, 2022 Caryn Rubanovich, Jill Robinson, Sarah Classen, Janet Malek, Kyle B. Brothers, Benjamin Wilfond, Barbara Koenig, Carol Horowitz, Christine Rini, Barbara…- Live
- Paper
- tools
- Genetic testing and screening
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Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity
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Video
ELSIcon2022 Paper: The Individual Genome as a Commons: Getting Genome Conceptualization and Governance Right
ELSIcon2022 • Paper • May 31, 2022 Shelly Simana Current "genome conceptualization and governance" (GCG) in the U.S. is framed around individual rights and has taken on a libertarian ethos. An…- Live
- Paper
- Data and data stewardship
- identity
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Video
ELSIcon2022 Paper: Using cost-utility analysis to evaluate the health equity impacts of population genetic screening for BRCA1/BRCA2
ELSIcon2022 • Paper • May 31, 2022 Kate Saylor Predictive genetic screening in unaffected individuals is becoming more accessible, but its relevance for advancing health equity is debated. Many…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Flash: What Led to the Abolition of Iowa’s State Eugenics Program in 1977?
ELSIcon2022 • Flash • May 31, 2022 Bridget Easler, Breanna Rinker, Alexandra Minna Stern, Elyse Thulin, Nicole Novak Iowa’s Board of Eugenics (BoE), which oversaw the sterilization of 1,910…- Live
- Flash
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Paper: “Big bioethics” research: Is the ELSI community ready?
ELSIcon2022 • Paper • May 31, 2022 Joel Pacyna, Richard Sharp ELSI research has traditionally sought to give patients greater voice—especially patients at the margins of healthcare who may be…- Live
- Paper
- Reflections on the ELSI field
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Attitudes toward and actual uptake of genetic testing among a nationally representative sample of middle-to-older aged U.S. adults
ELSIcon2022 • Paper • May 31, 2022 Drew Blasco, Sara Feldman, J. Scott Roberts Understanding factors that influence genetic testing decisions among older adults is important given emerging…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening