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Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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Video
TraineeHub Grantsmanship Series: The Writing and Uses of Specific Aims
"The Writing and Uses of Specific Aims" took place on July 19, 2023. The Specific Aims section of grant proposals is only one page, but it is one of the hardest to write, with many uses beyond the…- Specific Aims
- Grantsmanship
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Video
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
This ELSI Friday Forum took place on July 14, 2023. History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the…- population descriptors
- NASEM
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Video
Publishing in Bioethics Journals - What You Need to Know
Presenters: David Magnus, PhD & Holly Tabor, PhD Moderator: Maya Sabatello, LLB, PhD Date: June 29th, 2023, 12 p.m. ET This session for trainees and early…- Authorship
- Publishing
- Journals
- Bioethics
- Authorship
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Video
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
This ELSI Friday Forum took place on June 9, 2023. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of federal…- genetic privacy
- Legal
- Policy
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Video
Value and Values in Payment for Gene Therapies
The ELSI Friday Forum was held on May 12, 2023. Advances in gene therapies for monogenic disorders have brought hope of curative treatment. Since the Food and Drug Administration first approved a…- gene therapies
- cost of gene therapies
- payment
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Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Presenters: Shawneequa Callier, JD, MA & Eimear Kenny, PhD Moderator: Rob O'Malley, PhD Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a…- biology education
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Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Video
Exploring Difference in the Biology Classroom: What Genetic Ancestry Tests Mean (and What They Don't)
Presenters: Janina Jeff, PhD, MS & Jada Benn Torres, PhD Co-Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD Date: April 11 2023, 3-4 pm PT / 6-7 pm ET Genetic…- DTC
- genetic ancestry testing
- race and genetics
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Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos