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The University of Michigan School of Public Health will develop, implement, evaluate, document and disseminate a model curriculum concentration in public health genetics. The public health genetics…

The broad, long-term objectives of this proposal are to develop Genline, an electronic clinical genetics knowledge base, to assist health professionals in using the scientific advances of The Human…

About a dozen states have enacted laws restricting health insurers' use of genetic test information, and a new federal law declares that asymptomatic genetic predisposition to illness does not…

This is a comparative anthropological analysis of the social networks associated with three groups of heritable connective tissue disorders: 1) Marfan syndrome, epidermolysis bullosa and…

The New York State Task Force on Life and the Law will analyze the appropriate role for state government in issues of genetics policy, identify specific issues involving genetic testing and screening…

The specific aims of this research are to develop, implement, and assess the effectiveness of a decision balance risk-benefit component as part of the informed consent process for women deciding to…

This prospective, longitudinal study will examine decision-making about pre-surgery BRCA1/2 testing and the medical, psychosocial, and economic outcomes of testing among newly-diagnosed breast cancer…

This study (N=300) of women at high familial risk for breast and ovarian cancer aims to develop and assess a core intervention, based on state-of-the-art theory and research, to facilitate well-…

This study will explore the process by which families at increased risk of adult-onset disease decide to involve their children in research on genetic susceptibility. Through interviews with parents…

The project focuses on the applied development of an effective informed consent form and process for donation of blood to a DNA Bank solely for research purposes. This form will be used for securing…