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Psychiatric genetic research (PGR) holds great promise for preventing, understanding, and treating neuropsychiatric disorders - a source of immense societal burden and personal suffering. Such…

We examine the extent of public participation and influence in the shaping of legislation that regulates the permissible uses of information related to genetic testing. We propose to investigate…

IRBs can play vital roles in observing and responding to research integrity (Rl) issues among principal investigators (Pis), yet how these boards view and approach these roles has not been seriously…

Background: There is a growing awareness of family history as a risk factor for disease and the availability of genetic testing for inherited cancers continues to increase. However, effective,…

The post-genomic era is characterized by a strong and growing need for bioinformatics software tools designed to analyze and organize structural and functional genomic information. Intellectual…

The completion of the human genome project, the creation of unique genetic research resources, and the development of robust genome analysis technology, have provided powerful tools to unravel the…

Research is currently underway that seeks to deepen our understanding of the role of genetic factors in substance dependence and response to treatment. In order for the potential benefits of emerging…

As genetics and genomics become core features of clinical medicine, cancer survivors will be increasingly asked to participate in genomic research and will be offered the option of genetic…

Understanding the social factors that influence the translation of genetic information to improved human health is a major objective of genomics research (Grand Challenges II-5,II-6 and III-1). One…

The long-term objective of this project is to develop guidance on the disclosure of results from genetic research studies to participating patients and/or volunteers in order to facilitate the…