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  • Additional Resource

    Legal, Ethical, & Social Issues in Public Health Genetics Syllabus

    This core course offered by the Institute for Public Health Genetics provides an introduction to the ethical, legal, social, and policy issues arising as genetic or genomic knowledge and technologies…
    • syllabus
    • Newborn screening
    • Eugenics
    • Polygenic risk scores

  • Additional Resource

    The Robert Cook-Deegan Human Genome Archive

    The Robert Cook-Deegan Human Genome Archive is founded on the bibliography of The Gene Wars: Science, Politics, and the Human Genome, published in 1994 by W. W. Norton and Co., Inc. The full…
    • Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research

  • Additional Resource

    Rarefied Trailer

    Trailer for the documentary Rarefied. The documentary, directed & produced by Wil Weldon, follows the journey of nine families struggling with undiagnosed genetic conditions.
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    BRCA Gene Patenting Case

    Historical materials relating to Association of Molecular Pathology v. Myriad Genetics (“the Myriad Case”) on gene patents. These materials were created under the NHGRI-funded Duke Center of…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    History of Genomics

    Historical materials related to the Human Genome Project and genomics. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications)…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    Landmark Genomics Technologies

    Historical materials relating to seminal genomics technologies. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social Implications)…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    Intellectual Property Cases in Genomics

    Historical materials relating to genomics IP cases (other than AMP v. Myriad). These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    The Bermuda Principles

    Historical materials relating to the Bermuda Principles for genomic data sharing. These materials were created under the NHGRI-funded Duke Center of Excellence for ELSI (Ethical, Legal and Social…
    • Duke University Center for Public Genomics
    • Duke Center for Public Genomics
    • CpG
    • Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
    • CEER

  • Additional Resource

    ELSIcon2024 Poster | Connecting with the Ethical, Legal and Social Implications (ELSI) Research Program - NHGRI

    Authors: Lawrence Brody, Ph.D. - Division Director Sheethal Jose, Ph.D. - Program Director David Kaufman, Ph.D. - Program Director Rene Sterling, Ph.D., M.H.A. - Program Director Nicole Lockhart…
    • NHGRI
    • ELSI Research Program
    • ELSIcon2024

  • Additional Resource

    Introduction to Genetics, Ethics, and Society Syllabus

    A trainee-led team affiliated with the Stanford University Genetics Department (primary instructors: Roshni Patel and Rachel Ungar and secondary instructors: Alanna Pyke, Alvina Adimoelja, Anjali…
    • syllabus
    • Genetic Determinism
    • Race
    • ancestry
    • Social Responsibility