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Protecting participants in genomic research: Understanding the ‘Web of Protections’ afforded by federal and state law

Journal of Law, Medicine & Ethics

Leslie E. Wolf, Catherine M. Hammack, Erin Fuse Brown, Kathleen M. Brelsford, Laura M. Beskow

2020

Publication

Improving translation and cultural appropriateness of Spanish‐language consent materials for biobanks

Ethics & Human Research

Kathleen M. Brelsford, Ernesto Ruiz, Catherine M. Hammack, Laura M. Beskow

2019

Publication

Genomic databases, subpoenas, and certificates of confidentiality

Genetics in Medicine

Leslie E. Wolf, Laura M. Beskow

2019

Publication

Exploring understanding of "understanding": The paradigm case of biobank consent comprehension

American Journal of Bioethics

Laura M. Beskow, Kevin P. Weinfurt

2019

Publication

Thought leader perspectives on participant protections in precision medicine research

Journal of Law, Medicine & Ethic

Catherine M. Hammack, Kathleen M. Brelsford, Laura M. Beskow

2019

Publication

Informed consent in translational genomics: Insufficient without trustworthy governance

Journal of Law, Medicine & Ethics

Wylie Burke, Laura M. Beskow, Susan Brown Trinidad, Stephanie M. Fullerton, Kathleen Brelsford

2018

Publication

Improving biobank consent comprehension: A national randomized survey to assess the effect of a simplified form and review/retest intervention

Genetics in Medicine

Laura M. Beskow, Li Lin MS, Carrie B. Dombeck, Emily Gao, Kevin P. Weinfurt

2017

Publication

Lessons from HeLa cells: The ethics and policy of biospecimens

Annual Review of Genomics and Human Genetics

Laura M. Beskow

2016

Publication

Canadian research ethics board leadership attitudes to the return of genetic research results to individuals and their families

Journal of Law, Medicine & Ethics

Conrad V. Fernandez, P. Pearle O'Rourke, Laura M. Beskow

2016

Publication

Returning a research participant’s genomic results to relatives: Analysis and recommendations

The Journal of Law, Medicine & Ethics

Susan M. Wolf, Rebecca Branum, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness, Benjamin S. Wilfond

2016

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Protecting participants in genomic research: Understanding the ‘Web of Protections’ afforded by federal and state law

Improving translation and cultural appropriateness of Spanish‐language consent materials for biobanks

Genomic databases, subpoenas, and certificates of confidentiality

Exploring understanding of "understanding": The paradigm case of biobank consent comprehension

Thought leader perspectives on participant protections in precision medicine research

Informed consent in translational genomics: Insufficient without trustworthy governance

Improving biobank consent comprehension: A national randomized survey to assess the effect of a simplified form and review/retest intervention

Lessons from HeLa cells: The ethics and policy of biospecimens

Canadian research ethics board leadership attitudes to the return of genetic research results to individuals and their families

Returning a research participant’s genomic results to relatives: Analysis and recommendations

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