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Publication
Black community member perceptions and ethics recommendations on epigenomic research
Clinical Epigenetics -
Publication
Parents' perceptions of the utility of genetic testing in the NICU
Genetics in Medicineby Katharine Press Callahan, Rebecca Mueller, Steven Joffe, Cara Skraban, Nancy Spinner, Karen Crew, Justin Clapp, David Munson, & Chris Feudtner -
Publication
Perceptions of severity and their influence on reproductive decision-making following reproductive genetic carrier screening
European Journal of Human Genetics -
Publication
Severity in the genomic age: The significance of lived experience to understandings of severity
European Journal of Human Genetics -
Publication
Balancing the rights of the pre-symptomatic child to be found with the risk of harm to others from the screening process
European Journal of Human Genetics -
Publication
Termination of pregnancy for fetal malformations and severe genetic disorders: What are the laws in Europe?
European Journal of Human Genetics -
Publication
Harmonizing HTA evidence needs and expectations: Challenges and opportunities to improve evidence generation, ensure access and affordability
Clinical Pharmacology & Therapeutics -
Publication
Addressing risk in data centric research via community engagement
The American Journal of Bioethics -
Publication
From data to harm: Exploring ethical and social implications of polygenic scores for social traits
The American Journal of Bioethics