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Publication

Genetic and genomic researchers’ perspectives on biological sample sharing in collaborative research in Uganda: A qualitative study

Journal of Empirical Research on Human Research Ethics
David Kaawa-Mafigiri, Deborah Ekusai Sebatta, Ian Munabi, Erisa Sabakaki Mwaka

Publication

“I have fought for so many things”: Disadvantaged families’ efforts to obtain community-based services for their child after genomic sequencing

AJOB Empirical Bioethics
Sara L. Ackerman, Julia E. H. Brown, Astrid Zamora, Simon Outram

Publication

Ethical responsibilities for companies that process personal data

The American Journal of Bioethics
Matthew S. McCoy, Anita L. Allen, Katharina Kopp, Michelle M. Mello, D. J. Patil, Pilar Ossorio, Steven Joffe, Ezekiel J. Emanuel

Publication

Republicans, Democrats, & doctors: The lawmakers who wrote sterilization laws

Journal of Law, Medicine & Ethics
Paul A. Lombardo

Publication

Legal personhood and frozen embryos: Implications for fertility patients and providers in post-Roe America

Journal of Law and the Biosciences
Gerard Letterie, Dov Fox

Publication

Who would own the HeLa cell line if the Henrietta Lacks case happened in present-day South Africa?

Journal of Law and the Biosciences
Donrich W. Thaldar

Publication

Translational bioethics and health privacy

Ethics & Human Research
Mark A. Rothstein

Publication

Preferences for in-person disclosure: Patients declining telephone disclosure characteristics and outcomes in the multicenter Communication Of GENetic Test Results by Telephone study

Clinical Genetics
Nina Beri, Linda J. Patrick-Miller, Brian L. Egleston, Michael J. Hall, Susan M. Domchek, Mary B. Daly, Pamela Ganschow, Generosa Grana, Olufunmilayo I. Olopade, Dominique Fetzer, Amanda Brandt, Rachelle Chambers, Dana F. Clark, Andrea Forman, Rikki Gaber, Cassandra Gulden, Janice Horte, Jessica Long, Terra Lucas, Shreshtha Madaan, Kristin Mattie, Danielle McKenna, Susan Montgomery, Sarah Nielsen, Jacquelyn Powers, Kim Rainey, Christina Rybak, Michelle Savage, Christina Seelaus, Jessica Stoll, Jill E. Stopfer, Xinxin (Shirley) Yao, Angela R. Bradbury

Publication

Research participants’ experiences with return of genetic research results and preferences for web-based alternatives

Molecular Genetics & Genomic Medicine
Jill B. Gaieski, Linda Patrick-Miller, Brian L. Egleston, Kara N. Maxwell, Sarah Walser, Laura DiGiovanni, Jamie Brower, Dominique Fetzer, Amanda Ganzak, Danielle McKenna, Jessica M. Long, Jacquelyn Powers, Jill E. Stopfer, Katherine L. Nathanson, Susan M. Domchek, Angela R. Bradbury

Publication

Summary of the experiences, knowledge, medical management, and family communication of monoallelic MUTYH carriers

Journal of Genetic Counseling
Danielle B. McKenna, Pauleen Sanchez, Jacquelyn Powers, Jamie Brower, Louise Wang, Rebecca Mueller, Heather Symecko, Jada G. Hamilton, Temima Wildman, Susan M. Domchek, Fergus J. Couch, Judy E. Garber, Kenneth Offit, Mark E. Robson, Bryson W. Katona