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11 - 20 of 87 Topics
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Publication
An assessment of a shortened consent form for the storage and research use of residual newborn screening blood spots
J Empir Res Hum Res EthicsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Employees with intellectual disabilities during the COVID-19 pandemic: New directions for disability anti-discrimination law?
Oklahoma Law RevUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Maintaining the legal status of people with intellectual disabilites as parents: The ADA and the CRPD
Fam Court RevUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Family sense-making after a Down syndrome diagnosis
Qual Health ResUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Assessing clinical education tools for expanded carrier screening
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Previvorship posting: Why breast cancer previvors share their stories on social media
Health CommunUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Structurating expanded genetic carrier screening: A longitudinal analysis of online news coverage
J Health CommunUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Experiences and lessons learned by genetic counselors in returning secondary genetic findings to patients
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Using ethnodrama to support parents in sense-making after prenatal or neonatal diagnosis of a child's disabling condition
J Appl Res Intellect DisabilUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Business and breakthrough: Framing (expanded) genetic carrier screening for the public
Health CommunUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037