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Grant Abstract
Seeking Common Ground: A Forum for People with Disabilities and Genetics Professionals
The purpose of this project is to develop and host a workshop designed to bring people with disabilities, genetic disease health voluntary organizations and genetics professionals together to address… -
Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Video
ELSIcon2024: Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch The medical model of disability which…- ELSIcon2024
- 6th ELSI Congress
- disability
- Law, regulation, and governance
- reproductive genetics
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Grant Abstract
Genetics & Disability Insurance Ethics, Law & Policy
The University of Minnesota Center for Bioethics and the University's Joint Degree Program in Law, Health &the Life Sciences will complete a comprehensive investigation of the ethical, legal…- behavioral /social science research tag
- data collection methodology /evaluation
- employment /unemployment
- Ethics
- genetic disorder diagnosis
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Additional Resource
NIH Resources for Researchers with Disabilities
This NIH page provides information and resources for researchers with disabilities in biomedical research supported by extramural awards. Topics include funding opportunities, relevant grant policies…- National Institutes of Health (NIH)
- accessibility
- grant applications
- funding
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Publication
Genetics & disability insurance ethics, law & policy
JLME. Special Supplement : Genetic Testing and Disability Insurance -
Video
Human Germline Genome Editing and the Identity Politics of Genetic Disability
Felicity Boardman, PhD - University of Warwick ELSIconversations - April 2, 2021 The intersection of human germline genome editing with identity politics has a range of implications for the…- human germline genome editing
- Personal Identity
- genetic disability