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Grant Abstract
Genes & environment: new education to involve communities
This project is designed to promote public understanding of the social, ethical and legal implications of research on genetic susceptibility to environmental toxicants. In recognition of the…- behavioral /social science research tag
- Clinical Research
- community
- cooperative study
- Environmental Health
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Publication
Barriers and strategies related to qualitative research on genetic ancestry testing in indigenous communities
Journal of Empirical Research on Human Research Ethics -
Publication
Digital interventions for genomics and genetics education, empowerment, and service engagement: A systematic review
Journal of Community Genetics -
Publication
Approaches to engaging participants in a national cancer genomics research network
Journal of Clinical Oncology -
Grant Abstract
Ethics: A Bridge for Communities and Scientists
This proposal responds to the need for a sustained dialogue that promotes public understanding of the social, ethical and legal implications of the gene-environment interactions associated with…- asbestos
- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- Environmental Exposure
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Publication
Participant engagement in translational genomics research: Respect for persons-and then some
Ethics Hum ResClinical Sequencing Evidence-Generating Research (CSER) Consortium. -
Publication
Public engagement in shaping bioethics policy: Reasons for skepticism
The American Journal of Bioethics -
Publication
Preparing genetic counselors to serve Native American communities
Journal of Genetic Counseling -
Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
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Video
ELSIcon2022 Paper: Democratizing Knowledge for Sickle Cell Disease Gene Therapy: A Deliberative Stakeholder Engagement Approach
ELSIcon2022 • Paper • June 3, 2022 Kiana Amini, Vence Bonham The advent of genetic therapy technologies implicates both tremendous therapeutic promise and potential risk. Sickle cell disease…- Live
- Paper
- Gene therapy and gene editing