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Publication
Amid legal uncertainties, NIH approves more embryonic stem cells
Nature MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Publication
Laboratory policies and practices for the genetic testing of children: A survey of the Helix network
Am J Hum Genet -
News
Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce
View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022 Purpose The National Human Genome Research Institute (NHGRI) solicits nominations for its first annual Outstanding…- Applications Grants
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Publication
Commercialization and benefit sharing of biotechnology: Cross-cultural concerns?
Rowman & LittlefieldDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Consensus Study Report, Oversight and Review of Clinical Gene Transfer Protocols: Assessing the Role of the Recombinant DNA Advisory Committee, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
The Institute of Medicine of the National Academies authored this 2014 assessment of the oversight function of the NIH and the NIH Recombinant DNA Advisory Committee (RAC) over human gene transfer…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
A scoping review of distributed ledger technology in genomics: Thematic analysis and directions for future research
Journal of the American Medical Informatics Association -
Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
The proposed project is a qualitative study of recruitment and retention into the All of Us Research Program (AoURP) at a federally qualified health center (FQHC). A key component of the NIH's…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Publication
Retention and research use of residual newborn screening bloodspots
PediatricsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01 HG058854