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News
The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination
UNESCO’s 1997 Universal Declaration on the Human Genome and Human Rights sets up a bold vision, “No one shall be subjected to discrimination based on genetic characteristics that is intended to…- genetic discrimination
- Genomic Information
- Human Rights
- genetic information
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Publication
Inequalities and inclusion in genomics applied to healthcare: A Latin American perspective
Annual Review of Genomics and Human Genetics -
Publication
Is there a duty to reinterpret genetic data? The ethical dimensions
Genetics in MedicineAppelbaum and colleagues argue for the recognition of an ethical duty to reinterpret genetic variants, outline the elements of it, and consider who should bear responsibility. -
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
Publication
Stakeholder perspectives on ethical and trustworthy voice AI in health care
Digital Health -
Grant Abstract
National Information Resource on Ethics and Human Genetics
The goal of this project is to collect, and disseminate information on the ethical, legal, and social implications of human genetics. 'Human genetics' includes the HGP, genetic testing and…- Ethics
- human population genetics
- Information Systems
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Publication
Myriad Genetics: In the eye of the policy storm
Genet MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and… -
Publication
‘If I knew more… I would feel less worried’: Filipino Americans’ attitudes and knowledge of genetic disease, counseling, and testing
Public Health Genomics -
Publication
Clinician perspectives on policy approaches to genetic risk disclosure in families
Familial Cancer