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Publication
Cell-free fetal nucleic acid testing: A review of the technology and its applications
Obstet Gynecol Surv -
Publication
A proposed research agenda for ethical, legal, social, and historical studies at the intersection of infectious and genetic disease
The Journal of Law, Medicine & Ethics -
Publication
The Belgian DNA Debate: An online deliberative platform on the ethical, legal, and social issues of genomics
Public Health Genomics -
Grant Abstract
WWW-Based Genetics Curriculum for Medical Students
This R25 application will develop, evaluate, and implement an Internet-based education program specifically written to teach medical students about ELSI issues related to genetics, especially genetic…- computer assisted instruction
- curriculum
- education evaluation /planning
- educational resource design /development
- Ethics
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Publication
Risks associated with genetic modification: An annotated bibliography of peer reviewed natural science publications
Journal of Agricultural and Environmental EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Systematic mapping review of guidelines for BRCA1/2 genetic testing globally: Investigating geographic and regional disparities in health equity for women and families at risk for hereditary ovarian cancer
International Journal of Gynecological Cancer -
Research Tool
Data Dictionary: Pediatricians' Understanding of Children's Health Rights
This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The data dictionary for this study outlines the structure,… -
Research Tool
Codebook: Assessing the Financial Burden of Genetic Testing
Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The REDCap codebook for this study outlines each data element of the survey, including the questions… -
Additional Resource
Iowa State Statute (Iowa: IC §514J.101 et seq.)
A health carrier to notify a covered person of the right to request an external review and include appropriate statements and information in the written notice of a final adverse decision. Health…- state statute
- Iowa
- health insurance nondiscrimination
- Genetic Information Nondiscrimination Act