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Publication
Democracy and genetic privacy: The value of bodily integrity
Medicine, Health Care and Philosophy: A European JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Predictive genetic testing in Asia: Social science perspectives on the bioethics of choice
Journal of Bioethical InquiryDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Selecting barrenness: The use of preimplantation genetic diagnosis by congenitally infertile women to select for infertility
Human Reproduction and Genetic EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
I don't see any point in telling them': Attitudes to sharing genetic information in the family and carrier testing of relatives among British Pakistani adults referred to a genetics clinic
Ethnicity and HealthDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in South Korea. Professor Lee and Professor Kim are… -
News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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Publication
Assisting reproduction, testing genes: Global encounters with new biotechnologies
Berghahn BooksDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Viewing new creations with anabaptist eyes: Ethics of biotechnology
Cascadia Publishing HouseDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Challenging science: Issues for New Zealand society in the 21st century
Dunmore PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Body parts: Property rights and the ownership of human biological materials
Georgetown University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…