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Grant Abstract
The ELSI Electronic Case Book Project
This pilot project will develop a World-Wide Web document, the ELSI Electronic Case Book, to introduce primary care physicians and non physician providers to their future roles as facilitators of the…- allied health education
- behavioral /social science research tag
- biotechnology
- Books
- Ethics
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Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
Video
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
ELSIcon2022 • Networking Session • May 31, 2022 Katherine Blizinsky, Subhashini Chandrasekharan This listening session is intended to engage ELSI researchers and stakeholders to: i)…- Live
- Networking Session
- All of Us Research Program
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News
The Forefront of Genomics: ELSI and NHGRI’s 2030 Strategic Vision
After two years of planning, the NHGRI released its 2030 “Strategic vision for improving human health at The Forefront of Genomics.” published in Nature on October 28, 2020. Acknowledging the…- National Human Genome Research Institute
- NHGRI 2030 Strategic Vision
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Video
ELSIcon2022 Paper: ELSI and the New Precision Stewards?
ELSIcon2022 • Paper • May 27, 2022 Sara Watson, Karen Meagher Advances in pathogen genomics and molecular epidemiology are keeping pace with next generation sequencing translational…- Pre-Recorded
- Paper
- Population screening and public health genomics
- Population Genetics
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Publication
Genetic/genomic testing: Defining the parameters for ethical, legal and social implications (ELSI)
BMC Medical Ethics -
News
ELSI Abroad: Spotlight on the United Kingdom
CERA is pleased to share a set of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders. In this… -
Publication
Understanding the gap: A cross-sectional survey of ELSI scholars’ dissemination practices and translation goals
AJOB Empirical Bioethics -
Video
ELSIcon2022 Paper: “Big bioethics” research: Is the ELSI community ready?
ELSIcon2022 • Paper • May 31, 2022 Joel Pacyna, Richard Sharp ELSI research has traditionally sought to give patients greater voice—especially patients at the margins of healthcare who may be…- Live
- Paper
- Reflections on the ELSI field
- Genetic testing and screening