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1121 - 1130 of 2161 Topics
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Publication
Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: Guidance for policy
Canadian Medical Association Journal -
Publication
Effects of exposure to an entertainment-based genetic testing narrative on genetic testing Knowledge, attitudes and counseling discussion intentions
Journal of Health Communication -
Publication
Future of global regulation of human genome editing: A South African perspective on the WHO Draft Governance Framework on Human Genome Editing
Journal of Medical Ethics -
Publication
“Extremely slow and capricious”: A qualitative exploration of genetic researcher priorities in selecting shared data resources
Genetics in Medicine -
Publication
Opportunities and pitfalls of social media research in rare genetic diseases: A systematic review
Genetics in Medicine -
Publication
Genomic essentialism: Its provenance and trajectory as an anticipatory ethical concern
Hastings Center Report -
Grant Abstract
Ethical and Sociocultural Implications of Genetic Testing in Transplantation
Living donor kidney transplantation (LDKT) is promoted to redress the shortage of kidneys for transplantation. However, studies show that living donors (LDs) have a greater risk of kidney failure…- African American
- Alleles
- American
- Apolipoproteins
- Attitude
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Grant Abstract
Consensus guidelines for central IRBs in the multicenter study setting
The prevailing model for ethical review of multicenter clinical trials is a distributed system of reviews conducted by the Institutional Review Board (IRB) of each institution engaged in the conduct…- Clinical Trials
- Communication
- Conflict of Interest
- Consensus
- Counseling
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Publication
How scientists perceive CRISPR's translational promise and the implications for individuals with genetic conditions
Ethics & Human ResearchAlthough they occupy a new role as spokespersons for CRISPR-based cures, Halpern and colleagues find that bench scientists lack experiences with individuals with genetic conditions and the bioethical… -
Publication
Ethical, legal, and social implications of gene-environment interaction research
Genetic Epidemiology