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Consensus Study Report, Fostering Integrity in Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2017)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on best practices in research and research misconduct. It outlines the findings, conclusions…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Workplace perk or pitfall? A qualitative study of genetic counselors' perspectives and experiences with workplace genetic testing
Journal of Genetic Counseling -
Research Tool
Preferences for the Return of Pediatric Biobank Results Survey
Christensen and colleagues developed a survey to enable parents of pediatric patients to set preferences for return of individual results from research on pediatric biobank samples based on disease… -
Publication
Impact of gene patents and licensing practices on access to genetic testing for hereditary hemochromatosis. Peer-reviewed case study commissioned by the SACGHS
Genetics in MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Iowa 2011 State Bills (Iowa 2011 HF 597)
This bill requires a health carrier to notify a covered person of the right to request an external review and include appropriate statements and information in the written notice of a final adverse…- state bill
- bill
- bill status enacted
- Iowa
- employment nondiscrimination
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Additional Resource
NIH Institute and Center Data Sharing Policies in Addition to the Trans-NIH Policies
This NIH website provides short descriptions and links to the data sharing policies of institutes, centers, and research programs that exist in addition to the trans-NIH data sharing policies.- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
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Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Publication
Pure Glenn-fiditch. Review of Glenn McGee, Beyond genetics: Putting the power of DNA to work in your life
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…