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Video
ELSIcon2022 Flash: Ensuring equity through insurance coverage for whole exome sequencing and reanalysis
ELSIcon2022 • Flash • June 3, 2022 Caroline Horrow With the promise of whole exome sequencing (WES) and whole genome sequencing (WGS), some have argued for an ethical obligation to reinterpret…- Live
- Flash
- Access to genetic screening and therapies
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Additional Resource
Consensus Study Report, Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2010)
This National Academies Press publication provides best practices in the collection, storage, and sharing of human biological materials obtained during social science research.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Detecting identity by descent and estimating genotype error rates in sequence data
Am J Hum Genet -
Publication
Mending the gaps: Ethically sensitive cells and the evolution of European stem cell policy
Regenerative Medicine -
Additional Resource
Consensus Study Report, Mitochondrial Replacement Techniques Ethical, Social, and Policy Considerations, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the ethical, legal, and social issues associated with…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Reaching for precision healthcare in Finland via use of genomic data
Frontiers in Genetics -
Publication
Consumer attitudes and preferences toward psychiatric genetic counselling and educational resources: A scoping review
Patient Education and Counseling -