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Grant Abstract
Center on the Ethics of Indigenous Genomic Research
Narrative American Indian and Alaska Native concerns about genomic research have been well-documented and continue to constitute significant obstacles to participation in genomic research. Our center…- Academy
- Address
- Alaska Native
- American Indians
- Area
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Publication
On being a bioethicist: A Review of John H. Evans Playing God?: Human genetic engineering and the rationalization of public bioethical debate
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Exploring common ground in the stem cell ethical debate--a perspective for scientists: Introduction to this special issue of stem cell reviews
Stem Cell ReviewsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSICon2024: Closing Plenary Panel
ELSIcon2024 • Plenary • June 12, 2024 Authors: Plenary Panelist: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Plenary Panelist: Vardit Ravitsky - The…- ELSIcon2024
- 6th ELSI Congress
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Additional Resource
Workshop Proceedings, Emerging Technologies and Ethical Issues in Engineering, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2004)
This National Academies Press publication summarizes the proceedings of a workshop that explored the responsible development of new technologies and the inclusion of ethics in engineering education…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
CRISPR-Cas9 and He Jiankui's Case: An Islamic bioethics review using Maqasid al-Shari'a and Qawaid Fighiyyah
Asian Bioethics Review -
Publication
A review of: "Matthew Albright. Profits pending: How life patents represent the biggest swindle of the 21st century"
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…- Data Governance
- data sovereignty
- genomic data sharing policy
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Publication
Review of Inmaculada de Melo-Martín, Taking biology seriously: What biology can and cannot tell us about moral & public policy issues
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network
Journal of Personalized Medicine