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Publication
Statutory frameworks for regulating information flows: Drawing lessons for the DNA data banks from other government data systems
Journal of Law, Medicine & EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Pursuing public health benefit within national genomic initiatives: Learning from different policies
Frontiers in Genetics -
Publication
Patents and misplaced angst: Lessons for translational stem cell research from genomics
Cell Stem CellDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Availability of genetic tests in public health services in Brazil: Data from the Brazilian Rare Diseases Network
Public Health Genomics -
Publication
Patents and benefit-sharing as a challenge for corporate ethics
Martinus NijhoffDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The integration of genomics into public health research, policy and practice in the United States
Public Health Genomics -
Publication
Benefit-sharing and public trust in genetic research
University of Iceland PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Japanese genomics company offers shares in sequences
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Ethical Legal and Social Dimensions of Human Microbiome Research
We propose an exploratory survey, parallel to the Human Microbiome Project (HMP), of the emergent ethical, legal, and social issues associated with human microbiome research. We will implement this…- Bacteria
- base
- Code
- Collection
- college
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Grant Abstract
Public Opinion Deliberation and Decision Making about Genetics Research
How do ordinary Americans make sense of genetic research? How might they decide whether or not to participate in such research? The proposed study aims to address these questions, in a two-year panel…- Attitude
- Baseline Surveys
- Belief
- Complex
- Data