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Publication
What does "a gene for heart disease" mean? A focus group study of public understandings of genetic risk factors
Am J Med Genet A -
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Publication
Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel
BMC Med Ethics -
Publication
Genomic testing in the paediatric population: Ethical considerations in light of recent policy statements
Molecular Diagnosis and Therapy -
Publication
Studying genetic research participants: Lessons from the "Learning About Research in North Carolina" study
Cancer Epidemiol Biomarkers Prev -
Grant Abstract
Pathways to Genetic Screening: Patient Knowledge - Patient Practices
The purpose of this project is to illuminate the processes by which genetic screening and genetic concepts of health and illness penetrate two contrasting communities and become integrated into the… -
News
Unique Collaboration Supports Research Communication in Social and Behavioral Genomics
Despite some fundamental disagreements about the risks versus the potential benefits of social and behavioral genomics, the interdisciplinary group of researchers behind the new ‘FAQs on Human…- Behavioral Genetics
- Behavioral and Social Science
- FAQs
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Video
July 2024 ELSI Friday Forum: Assessing and Reimagining the Role of ELSI in Creating Transformative Science
How can ELSI center justice in science to promote to transformative outcomes? Since its inception, ethical, legal, and social implications (ELSI) research has been pivotal in centering ethical…- ELSI
- Funding
- science and society